Institut für Ethik und Geschichte der Medizin
| Julia Perry, M.A.Julia Perry, M.A. |
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Julia Perry, M.A.

Research interests

  • Implications of genetic testing and prediction
  • Personalized medicine
  • Physician-patient communication and relation
  • Medical knowledge of lay people
  • Dementia & research ethics

Biographical note

Since November 2017: Research associate at the Department of Medical Ethics and History of Medicine within the research project: Dilemmas of Predictive Dementia Diagnostics:German Stakeholder Conference forImproving Ethics Competence in Healthcare and Life Sciences [further information] [Project website]

June-December 2017: Research assistant at the Department of Medical Ethics and History of Medicine within the research project: Ethical implications of early diagnosis and prediction of dementia: A socio-empirical study with stakeholders

2016-2017: Student research assistant at the Department of Medical Ethics and History of Medicine within the research project: Mind The Risk. Ethical, Psychological and Social Implications of Provision of Risk Information from Genetic and Related Technologies (Link)

Master’s thesis: “Dealing with the complexity of medical information in colorectal cancer treatment: Awareness, needs, and uncertainty concerning treatment procedure and participation in biomarker research – a qualitative study of ten patients in longitudinal section” (September 2016)

2015-2016: Student research assistant at the Department of Medical Ethics and History of Medicine within the research project: A Study of ‘Desired Children’ in Germany and India as a context leading to prenatal genetic diagnosis and selective abortions under the supervision of Dr. Sheela Saravanan (Link)

2012-2015: Student research assistant at the Department of Medical Ethics and History of Medicine Working on the KFO 179/2 project in cooperation with the University Medical Center Göttingen – sub-project 9: Ethical aspects in individualized rectal cancer therapy: patients' expectations and attitudes toward prognostic tests using biomarkers – A socio-empirical and medical-ethical analysis under the supervision of Professor Dr. Silke Schicktanz and Dr. Sabine Wöhlke (Link)

2010-2016: Master’s degree in sociology at the Georg-August-University Göttingen

May-September 2012: Internship at Tian Shan Policy Center, Bishkek, Kyrgyzstan

2009-2010: Erasmus at Stockholm University, Sweden

2007-2010: Bachelor’s degree in sociology at the University of Bremen

Publications

Jongsma, K., Perry, J., Schicktanz, S. Forschungsvorausverfügungen in der Demenzforschung: Viele konkrete Fragen sind laut deutscher Experten noch zu klären, Dtsch Arztebl (accepted May 2018)

Wöhlke, S., Perry, J., Schicktanz, S. Physicians’ communication patterns for motivating colorectal cancer patients to biomarker research: empirical insights and ethical issues, Clinical Ethics (accepted May 2018)

Wöhlke, S., Perry, J., Schicktanz, S. Physicians’ communication patterns for motivating colorectal cancer patients to biomarker research: empirical insights and ethical issues, Clinical Ethics (submitted 3/2017)

Perry, J., Wöhlke, S., Heßling, A. C. and Schicktanz, S. (2016). Why take part in personalised cancer research? Patients’ genetic misconception, genetic responsibility and incomprehension of stratification—an empirical-ethical examination. European Journal of Cancer Care, 00: 1–12. doi: 10.1111/ecc.12563

Publication awarded as GöVIP (Very Important Publications) in the category Clinical Science (Link)

Wöhlke, S., Perry, J. and Schicktanz, S. (2015). Taking it Personally: Patients’ Perspectives on Personalised Medicine and its Ethical Relevance. In: J. Vollman, V. Sandow, S. Wäscher and J. Schildmann, ed., The Ethics of Personalised Medicine: Critical Perspectives. Farnham: Ashgate, p. 129-147.

Presentations & Moderation

"Wie stehen Betroffene zu Forschungsvorausverfügungen? - Konzepte und Ergebnisse empirischer Forschung", Conference "Forschung mit besonders vulnerablen Gruppen in der Psychiatrie. Ethische Herausforderungen in der forensisch-psychiatrischen Forschung und der klinischen Demenzforschung" AG "Ethik in der Psychiatrie" German Academy of Ethics in Germany (AEM), February 7, 2018, Göttingen

"Stakeholder-Diskurs: Konfliktfall Demenzvorhersage", Conference "Menschenrechte für Personen mit Demenz" University of Erlangen-Nürnberg, November 10-11, 2017, Nürnberg

"Physicians’ communication patterns for motivating rectal cancer patients to biomarker research participation: empirical insights and ethical issues", 31st European Conference on Philosophy of Medicine and Health Care, August 16-19, 2017, Belgrade, Serbia

"The risks they are a changin’ – How do individual differences in disease perception affect the opportunities and limitations of predictive genetic testing", Mind the Risk Project Workshop, February 20-22, 2017, Bowness on Windermere, UK

"Barriers of informative communication and patients’ needs when it gets risky. Colorectal cancer patients involved in biomarker research – results from a qualitative study", Third International Mind the Risk Project Workshop “From theory to practice: Clinical and practical applications of genetic risk research”, May 12-13, 2016, Birmingham, UK

Moderation of the discussion of the film "Coma" with two experts on the topic “Error Culture in Medicine” within the film series: “Bioethik im Film Vol. II, Ethics’ Anatomy” at the movie theater Lumière in Göttingen, May 5, 2015

"Wer versteht das schon? Grenzen der Kommunikation und des Verstehens von Patienten in der Biomarker-Forschung", Jahrestagung der Akademie für Ethik in der Medizin "Technisierung der Medizin als ethische Herausforderung", October 9-11, 2014, Ulm


Project Postcard