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Julia Perry, M.A.

Contact
Phone.: +49(0)551-39 69315
Mail: julia.perry(at)medizin.uni-goettingen.de
Room: 2.108

Biographical note

Since May 2020: Research associate at the Department of Medical Ethics and History of Medicine within the research project: Well Advised: New Multi-Mode and Standardized Counseling Models for People in Early Stages of Alzheimer’s Disease or in the Context of Dementia Prediction [for further information]

Since February 2020: Research associate at the Department of Medical Ethics and History of Medicine within the research project: Ethical and Social Issues of Co-Intelligent Monitoring and Assistive Technologies in Dementia Care (EIDEC), project coordination [for further information] [Project website]

Since October 2018: Cumulative PhD in Sociology. Working Title „New Developments in Dementia Research – A Sociological, Empirical, and Discourse Analytical Approach for Exploring Different Stakeholder Perspectives“

November 2017 - April 2020: Research associate at the Department of Medical Ethics and History of Medicine within the research project: Dilemmas of Predictive Dementia Diagnostics: German Stakeholder Conference for Improving Ethics Competence in Healthcare and Life Sciences [for further information] [Project website]

June-December 2017: Research assistant at the Department of Medical Ethics and History of Medicine within the research project: Ethical implications of early diagnosis and prediction of dementia: A socio-empirical study with stakeholders

2016-2017: Student research assistant at the Department of Medical Ethics and History of Medicine within the research project: Mind The Risk. Ethical, Psychological and Social Implications of Provision of Risk Information from Genetic and Related Technologies (Link

2016: Master of Arts in sociology at the Georg-August-University Göttingen

Master’s thesis: “Dealing with the complexity of medical information in colorectal cancer treatment: Awareness, needs, and uncertainty concerning treatment procedure and participation in biomarker research – a qualitative study of ten patients in longitudinal section” (September 2016)

2015-2016: Student research assistant at the Department of Medical Ethics and History of Medicine within the research project: A Study of ‘Desired Children’ in Germany and India as a context leading to prenatal genetic diagnosis and selective abortions under the supervision of Dr. Sheela Saravanan (Link)

2012-2015: Student research assistant at the Department of Medical Ethics and History of Medicine Working on the KFO 179/2 project in cooperation with the University Medical Center Göttingen – sub-project 9: Ethical aspects in individualized rectal cancer therapy: patients' expectations and attitudes toward prognostic tests using biomarkers – A socio-empirical and medical-ethical analysis under the supervision of Professor Dr. Silke Schicktanz and Dr. Sabine Wöhlke (Link)

May-September 2012: Internship at Tian Shan Policy Center, Bishkek, Kyrgyzstan

2010: Bachelor of Arts in sociology at the University of Bremen

2009-2010: Erasmus at Stockholm University, Sweden

  • Implications of genetic testing and prediction
  • Dementia & research ethics
  • Medical knowledge of lay people
  • Personalized medicine
  • Physician-patient communication and relationship

Schicktanz, S., Perry, J., Herten, B., Stock Gissendanner, S. (2020) Demenzprädiktion als ethische Herausforderung: Stakeholder fordern Beratungsstandards für Deutschland. Nervenarzt. doi.org/10.1007/s00115-020-00985-y

Jongsma, K., Perry, J. (shared 1stauthorship), Schicktanz, S., Radenbach, K. (2020). Motivations for people with cognitive impairment to complete an advance research directive – a qualitative interview study. BMC Psychiatry 20(360). doi.org/10.1186/s12888-020-02741-7

Wöhlke, S., Perry, J. (2019). Responsibility in dealing with genetic risk information, Social Theory & Health https://doi.org/10.1057/s41285-019-00127-8

Perry, J., Wöhlke, S., Metselaar, S., Halpern, J. (2019). Dealing with Misconception in Biomedical Research, Journal of Empirical Research on Human Research Ethics (JEHRE) doi: 10.1177/1556264619831589

Jongsma, K., Perry, J., Schicktanz, S. (2018). Forschungsvorausverfügungen in der Demenzforschung: Viele konkrete Fragen sind laut deutscher Experten noch zu klären, Dtsch Arztebl, 115(39): A-1696 / B-1430 / C-1416.

Wöhlke, S., Perry, J., & Schicktanz, S. (2018). Physicians’ communication patterns for motivating rectal cancer patients to biomarker research: Empirical insights and ethical issues. Clinical Ethics, 13(4), 175–188. https://doi.org/10.1177/1477750918779304

Wöhlke, S., Perry, J., Schicktanz, S. Physicians’ communication patterns for motivating colorectal cancer patients to biomarker research: empirical insights and ethical issues, Clinical Ethics (submitted 3/2017) 

Perry, J., Wöhlke, S., Heßling, A. C. and Schicktanz, S. (2016). Why take part in personalised cancer research? Patients’ genetic misconception, genetic responsibility and incomprehension of stratification—an empirical-ethical examination. European Journal of Cancer Care, 00: 1–12. doi: 10.1111/ecc.12563

Publication awarded as GöVIP (Very Important Publications) in the category Clinical Science (Link)

Wöhlke, S., Perry, J. and Schicktanz, S. (2015). Taking it Personally: Patients’ Perspectives on Personalised Medicine and its Ethical Relevance. In: J. Vollman, V. Sandow, S. Wäscher and J. Schildmann, ed., The Ethics of Personalised Medicine: Critical Perspectives. Farnham: Ashgate, p. 129-147.

"Advance research directives for dementia research – What do affected people think? Insights from an interview study in Germany", International Online Symposium: Dementia Prediction and Risk Reduction: Socio-Cultural Insights, Ethical Reflections and Future Developments, December, 07-08, 2020, Online, together with Dr. Karin Jongsma

"Patientenrechte wahrnehmen: Stakeholderbeteiligung für mehr Mitbestimmung aller relevanten Gruppen", Nursing Ethics Congress, March 04-06, 2020, Vienna, together with Adm. Prof. Dr. Sabine Wöhlke

"Stakeholder-Beteiligung als Methode: eine Reflexion", Annual Conference of the German Academy of Ethics in Medicine (AEM), September 28, 2019, Göttingen

"Zur Relevanz der Beteiligung von Patientenorganisationen an gesundheitspolitischen Entscheidungen am Beispiel der personalisierten Medizin" Workshop at the Annual Conference of the German Academy of Ethics in Medicine (AEM), September 27, 2019, Göttingen, together with Dr. Sabine Wölke and Carolin Rauter, cand. med

"Stakeholder-Involvement for the Prospective Assessment of Medical Technologies: A Methodological Reflection", EACME Annual Conference: Rethinking Ethics in 21st Century Europe, September 13, 2019, Oxford

"Advance research directives: Anticipating future research commitment in the context of dementia research",Conference Preparing for Physicians. The ambivalences of empowerment, June 28, 2019, Siegen

"Advance research directives: Anticipating future research commitment in the context of dementia research", Conference Bioethics and Human Temporality. Perspectives from the Beginning, Middle and End of Life, May 28, 2019, Oldenburg

“Stakeholder-Beteiligung zur prospektiven Einschätzung medizinischer Technologien: eine methodische Reflexion“, Conference Befragen oder Beteiligen? Die Rolle von Stakeholdern in der Gesundheitsforschung, March 28, 2019, Munich

"Enhancing ethical awareness and communication skills: The first Germany-wide stakeholder conference on dementia prediction", Conference "Alzheimer Europe", October 30, 2018, Barcelona

"Dilemmas of predictive dementia diagnostics: German stakeholder conference for improving ethics competence in healthcare professions", Conference "EACME", September 06, 2018, Amsterdam

"Wie stehen Betroffene zu Forschungsvorausverfügungen? - Konzepte und Ergebnisse empirischer Forschung", Conference "Forschung mit besonders vulnerablen Gruppen in der Psychiatrie. Ethische Herausforderungen in der forensisch-psychiatrischen Forschung und der klinischen Demenzforschung" AG "Ethik in der Psychiatrie" German Academy of Ethics in Germany (AEM), February 7, 2018, Göttingen

"Stakeholder-Diskurs: Konfliktfall Demenzvorhersage", Conference "Menschenrechte für Personen mit Demenz" University of Erlangen-Nürnberg, November 10-11, 2017, Nürnberg - won award

"Physicians’ communication patterns for motivating rectal cancer patients to biomarker research participation: empirical insights and ethical issues", 31st European Conference on Philosophy of Medicine and Health Care, August 16-19, 2017, Belgrade, Serbia

"The risks they are a changin’ – How do individual differences in disease perception affect the opportunities and limitations of predictive genetic testing", Mind the Risk Project Workshop, February 20-22, 2017, Bowness on Windermere, UK

"Barriers of informative communication and patients’ needs when it gets risky. Colorectal cancer patients involved in biomarker research – results from a qualitative study", Third International Mind the Risk Project Workshop “From theory to practice: Clinical and practical applications of genetic risk research”, May 12-13, 2016, Birmingham, UK

Moderation of the discussion of the film "Coma" with two experts on the topic “Error Culture in Medicine” within the film series: “Bioethik im Film Vol. II, Ethics’ Anatomy” at the movie theater Lumière in Göttingen, May 5, 2015 

"Wer versteht das schon? Grenzen der Kommunikation und des Verstehens von Patienten in der Biomarker-Forschung", Jahrestagung der Akademie für Ethik in der Medizin "Technisierung der Medizin als ethische Herausforderung", October 9-11, 2014, Ulm